Sounds like a bad joke, right? Only it isn’t. Through a series of miscommunications and things that would be heartbreakingly comic if I was watching it on TV, my son ended up freaking out on the school bus. So much so that the school police were called. My car had mysteriously died this morning, my baby [...]
Posts Tagged ‘special needs’
So The Police Show Up With My Eight-Year-Old Son…
Posted in Writing, tagged isn't he a little short to be a dealer, Las Vegas, Mercedes M. Yardley, school bus, special needs, that isn't my child officer, Williams Syndrome on November 16, 2011 | 3 Comments »
Guest Post: “Why I Hate The ‘R’ Word” by N. Paslay
Posted in Writing, tagged essay, Nancy Paslay, nonfiction, respect, special needs, the "r" word, Williams Syndrome on March 3, 2011 | 7 Comments »
Let me introduce you to my writer friend and fellow Williams Syndrome mother, N. Paslay. She wrote an essay that struck deep into my heart. I’m grateful that she allowed me permission to share her words here. I cringe whenever I hear this word, precisely for the reasons that she so eloquently states. Please, let’s [...]
Something Humbling
Posted in Writing, tagged prioritizing, special needs, things that are scary, Williams on September 24, 2010 | 19 Comments »
I’ve been a blogger since 2005. I wasn’t blogging about the wonderful world of writing; I was writing about my son. He was diagnosed with a strange genetic syndrome and it very much felt like we were set adrift after that. Few had seen the syndrome before. We were alone. I started my blog at www.williamssyndrome.blogspot.com because [...]
Resilience and Fragility
Posted in Writing, tagged doing things that are hard, special needs, Williams Syndrome on March 29, 2010 | 18 Comments »
It’s 1:00 in the morning and I can’t sleep. I’m working on the Williams project and, quite frankly, it’s hard. Do I believe in it? YES. Is it a book that needs to be written? YES. But it hurts. Honesty hurts. I thought that my piece coming out in the second issue of Shock [...]
I’m Queen of the Wooooooorld!
Posted in Writing, tagged adversity, challenges, special needs, Williams Syndrome, WIP Wednesday on February 3, 2010 | 19 Comments »
Ladies and gentlemen, boys and girls. Friends, Romans, and Writers, lend me your ears: I am Queen of the World! I have been under an inordinate amount of stress lately. Real Life responsibilities, waiting on test results for my son, and literary deadlines have nearly done me in. And then today happened. The most important [...]
Today’s Thoughts on Williams Syndrome
Posted in Writing, tagged child, hope, special needs, Williams Syndrome, writing a book on December 29, 2009 | 16 Comments »
Small Son’s test results came back, and his calcium is elevated. Once upon a time this happened to us, and he descended into kidney failure because of it. We’re hoping it can be changed with diet instead of drugs, and I’m keeping a diary of everything that he puts into his mouth. It isn’t much. [...]
Zombie Poetry and Interdimensional Wombats
Posted in Writing, tagged poetry, special needs on March 27, 2009 | 4 Comments »
I just had a poem accepted for A. P. Fuchs’ ”Poems of the Dead” anthology. I’m pretty excited about it. I noticed that my little paper stack of “I’ve been published in this!” is getting a bit thicker. It really makes me happy. I only have a few days left to get RunStarGirl into the [...]
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