Did you know that February 29 is Rare Disease Day? It’s also Jay Faulkner’s birthday. Jay is a family man, editor, and friend who allowed me to do a guest post on his blog to raise rare disease awareness. I’ll actually have a few posts there through the month, since my family and I seem to constantly [...]
Posts Tagged ‘Williams Syndrome’
Thanksgiving in Vegas
Posted in Writing, tagged being grateful, happy holidays, Las Vegas, Mercedes M. Yardley, Thanksgiving, the great outdoors, Williams Syndrome, yes that's a vacuum in the picture on November 24, 2011 | 3 Comments »
It’s all sunshine and hummingbirds. Happy Thanksgiving, my friends!
So The Police Show Up With My Eight-Year-Old Son…
Posted in Writing, tagged isn't he a little short to be a dealer, Las Vegas, Mercedes M. Yardley, school bus, special needs, that isn't my child officer, Williams Syndrome on November 16, 2011 | 3 Comments »
Sounds like a bad joke, right? Only it isn’t. Through a series of miscommunications and things that would be heartbreakingly comic if I was watching it on TV, my son ended up freaking out on the school bus. So much so that the school police were called. My car had mysteriously died this morning, my baby [...]
Guest Post: “Why I Hate The ‘R’ Word” by N. Paslay
Posted in Writing, tagged essay, Nancy Paslay, nonfiction, respect, special needs, the "r" word, Williams Syndrome on March 3, 2011 | 7 Comments »
Let me introduce you to my writer friend and fellow Williams Syndrome mother, N. Paslay. She wrote an essay that struck deep into my heart. I’m grateful that she allowed me permission to share her words here. I cringe whenever I hear this word, precisely for the reasons that she so eloquently states. Please, let’s [...]
WIP Wednesday: The Gauntlet is Thrown
Posted in Writing, tagged deadlines, I will steal your work and your soul, Illiterati, motivation, Williams Syndrome, writers group on October 6, 2010 | 9 Comments »
Wow, and it was thrown in a big way. My goal is to have my Williams Project in the hands of Mr. Agenty Man J by November first. This gives me a concrete deadline as well as clearing my plate for my fifth NaNoWriMo, yeah? I can totally do it. First I have to [...]
Why Focus on the Can’ts?
Posted in Writing, tagged disabilty, positive thinking, Williams Syndrome on July 24, 2010 | 24 Comments »
Hello. This is the face of a disability. I think that it’s pretty cute. My son Niko has Williams Syndrome. He was diagnosed when he was about a year old. Williams is becoming more common, but when he was diagnosed, we hadn’t heard of it. It was a crazy mystery that messed with his genes. [...]
Adding A Happy Chapter
Posted in Writing, tagged happy things, Williams Syndrome on May 31, 2010 | 8 Comments »
I took a week off of the Williams project because I needed to. I needed to dance around and fill my mind with butterflies and glitter again instead of hypodermic needles and the smell of antiseptic. But we just spent two days testing with some of the leading authorities of Williams Syndrome, and my son [...]
Resilience and Fragility
Posted in Writing, tagged doing things that are hard, special needs, Williams Syndrome on March 29, 2010 | 18 Comments »
It’s 1:00 in the morning and I can’t sleep. I’m working on the Williams project and, quite frankly, it’s hard. Do I believe in it? YES. Is it a book that needs to be written? YES. But it hurts. Honesty hurts. I thought that my piece coming out in the second issue of Shock [...]
Love Letters: WIP Wednesday
Posted in Writing, tagged love letters, Williams Syndrome, WIP Wednesday on February 24, 2010 | 5 Comments »
Still over the moon about the Skipp anthology. But that doesn’t mean that I’m slacking. I threw down the gauntlet and issued a challenge to a few friends on Monday. Each one of us made it into an e-book, and that is pretty cool. Getting into an antho is always fun, but crashing the party [...]
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