Something Humbling

I’ve been a blogger since 2005.  I wasn’t blogging about the wonderful world of writing; I was writing about my son.  He was diagnosed with a strange genetic syndrome and it very much felt like we were set adrift after that.  Few had seen the syndrome before.  We were alone.  I started my blog at www.williamssyndrome.blogspot.com because I was standing atop my … Read More

Resilience and Fragility

  It’s 1:00 in the morning and I can’t sleep.  I’m working on the Williams project and, quite frankly, it’s hard.  Do I believe in it? YES.  Is it a book that needs to be written?  YES.  But it hurts.  Honesty hurts. I thought that my piece coming out in the second issue of Shock Totem made me feel naked.  … Read More

Resilience and Fragility

  It’s 1:00 in the morning and I can’t sleep.  I’m working on the Williams project and, quite frankly, it’s hard.  Do I believe in it? YES.  Is it a book that needs to be written?  YES.  But it hurts.  Honesty hurts. I thought that my piece coming out in the second issue of Shock Totem made me feel naked.  … Read More

I’m Queen of the Wooooooorld!

Ladies and gentlemen, boys and girls.  Friends, Romans, and Writers, lend me your ears:  I am Queen of the World! I have been under an inordinate amount of stress lately.  Real Life responsibilities, waiting on test results for my son, and literary deadlines have nearly done me in.  And then today happened. The most important thing is that my son’s … Read More

Today’s Thoughts on Williams Syndrome

Small Son’s test results came back, and his calcium is elevated.  Once upon a time this happened to us, and he descended into kidney failure because of it.  We’re hoping it can be changed with diet instead of drugs, and I’m keeping a diary of everything that he puts into his mouth.  It isn’t much. Today he was supposed to … Read More

Zombie Poetry and Interdimensional Wombats

I just had a poem accepted for A. P. Fuchs’  “Poems of the Dead” anthology.  I’m pretty excited about it.  I noticed that my little paper stack of “I’ve been published in this!” is getting a bit thicker.  It really makes me happy. I only have a few days left to get RunStarGirl into the interdimensional wombat’s inbox or I’m … Read More